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Caregiver involvement in applied behavior-analytic research: A scoping review and discussion.

Jessica L BecraftSamantha L HardestyKissel J GoldmanLesley A ShawlerMatthew L EdelsteinPhillip Orchowitz
Published in: Journal of applied behavior analysis (2023)
We conducted a scoping review to characterize the role of caregiver involvement in behavior-analytic research. We reviewed eight behavioral-learning journals from 2011-2022 for works that included children or caregivers as participants and characterized caregiver involvement as passive (implications for caregivers, input, social validity) and active (implementation, caregiver behavior, training, caregiver-collected data). The review identified 228 studies, and almost all (96.1%; n = 219) involved caregivers in some capacity; 94.3% (n = 215) had passive involvement (26.8% had only passive involvement; n = 61), 69.3% (n = 158) had active involvement (1.8% had only active involvement; n = 4), and 3.9% (n = 9) had neither passive nor active involvement. Involvement generally increased over publication years. The most common types of involvement were implications for caregivers, implementation, and input; caregiver-collected data were rare. We propose considerations when engaging caregivers in research and suggest new avenues of inquiry related to caregivers' treatment objectives and social validity, treatment implementers, and caregiver-collected data.
Keyphrases
  • palliative care
  • healthcare
  • primary care
  • mental health
  • randomized controlled trial
  • electronic health record
  • young adults
  • big data
  • replacement therapy