Caring for the Family Caregiver: Development of a Caregiver Clinic at a Cancer Hospital as Standard of Care.
Rinat S NissimSarah HalesPublished in: Journal of clinical psychology in medical settings (2022)
Family caregivers make significant contributions to the overall care of cancer patients and are the "invisible backbone" of the health care system. Family caregivers experience a wide range of challenges and can be considered patients in their own right, requiring support and dedicated attention, which may benefit them, the patients they are caring for, and the health care system. Despite consistent evidence on caregiver distress and unmet needs, most cancer care is organized around the patient as the target of care and caregiver distress is not screened for or addressed systematically. This article describes the development of a novel clinical, educational, and research program dedicated to supporting family caregivers at the Princess Margaret Cancer Center, Toronto, Canada and presents a model for a brief psychosocial intervention for caregivers. The objective of this article is to assist others in developing services to address the needs of family caregivers as a standard of care.
Keyphrases
- healthcare
- palliative care
- end stage renal disease
- quality improvement
- ejection fraction
- newly diagnosed
- chronic kidney disease
- randomized controlled trial
- primary care
- peritoneal dialysis
- prognostic factors
- papillary thyroid
- affordable care act
- mental health
- pain management
- emergency department
- squamous cell carcinoma
- young adults
- chronic pain
- case report
- lymph node metastasis