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Feedback of individual genetic and genomics research results: A qualitative study involving grassroots communities in Uganda.

Joseph OchiengBetty KwagalaJohn BarugahareMarlo MöllerKeymanthri Moodley
Published in: PloS one (2022)
Participation in hypothetical GGR as well as feedback of results is acceptable to individuals in grassroots communities. However, the strong therapeutic and/or diagnostic misconception linked to GGR is concerning given that hopes for therapeutic and/or diagnostic benefit are unfounded. Viewing GGR as an opportunity to confirm or dispute paternity was another interesting perception. These findings carry profound implications for consent processes, genetic counselling and research ethics guidance. Privacy and confidentiality, benefits, risks as well as implications for sharing need to be considered for such feedback of results to be conducted appropriately.
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