Mapping exercise and status update of eight established registries within the TREatment of ATopic eczema Registry Taskforce.
Angela Leigh-Ann L BosmaAnnelie H MustersManja BloemLouise A A GerbensMaritza A Middelkamp-HupEva HaufeJochen SchmittSébastien BarbarotJulien SeneschalDelphine Staumont-SalléEmma K JohanssonMaria BradleyLaura B von KobyletzkiIda VittrupIben Frier RugeJacob Pontoppidan ThyssenChristian L VestergaardMarina de VegaIgnacio García DovalAndrea ChiricozziLuca StingeniPiergiacomo Calzavara-PintonMichael R Ardern-JonesNick J ReynoldsCarsten FlohrPhyllis I SpulsPublished in: Journal of the European Academy of Dermatology and Venereology : JEADV (2022)
A total of 4702 participants have been recruited in the eight registries as of 1st of May 2022. Of the 69 core dataset domain items, data pooling was possible for 69 domain item outcomes in TREAT NL (the Netherlands), 61 items in A-STAR (UK and Ireland), 38 items in TREATgermany (Germany), 36 items in FIRST (France), 33 items in AtopyReg (Italy), 29 items in Biobadatop (Spain), 28 items in SCRATCH (Denmark) and 20 items in SwedAD (Sweden). Pooled analyses across all registries can be performed on multiple important domain items, covering the main aims of analysing data on the (cost-)effectiveness and safety of AE therapies. These results will facilitate future comparative or joint analyses.