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Involving the public in epidemiological public health research: a qualitative study of public and stakeholder involvement in evaluation of a population-wide natural policy experiment.

Rachel Mary Anderson de CuevasLotta NylénBo BurströmMargaret Whitehead
Published in: BMJ open (2018)
Participants sensed more drastic and nuanced change in the Swedish welfare system over recent decades than was evident from our literature reviews and policy analysis. They also elaborated hidden developments in the Swedish labour market that were increasingly leading to 'insiders' and 'outsiders', with differing experiences and consequences for financial and job security. Their explanation of the differential effects of the various collective agreements for different occupational groups was new and raised further potential research questions. Their first-hand experience provided new insights into how changes to the social protection system were contributing to the increasing trends in poverty among unemployed people with limiting long-standing illness. The politicians provided further reasoning behind some of the policy changes and their intended and unintended consequences. These insights fed into subsequent reporting of the flexicurity evaluation results, as well as the conceptualisation of new research that could be pursued in a future programme.
Keyphrases
  • public health
  • mental health
  • healthcare
  • global health
  • systematic review
  • adverse drug
  • health insurance
  • study protocol
  • current status
  • clinical trial
  • young adults
  • risk assessment
  • data analysis