Qualitative Analysis of Decision to Pursue Electrical Brain Stimulation by Patients With Drug-Resistant Epilepsy and Their Caregivers.
Irena BalzekasJordan P RichardsonIsabella LorenceBrian Nils LundstromGregory A WorrellRichard R SharpPublished in: Neurology. Clinical practice (2024)
Our findings describe the motivations and decision-making process for patients with DRE who pursue invasive EBS. Patients balance feelings of desperation, personal goals, frustration with medication side effects, fears about surgery, and potential pressure from concerned caregivers. These factors together with the sense that patients have exhausted therapeutic alternatives may explain the limited decisional ambivalence observed in this cohort. These themes highlight opportunities for epilepsy care teams to support patient decision-making processes.
Keyphrases
- drug resistant
- decision making
- end stage renal disease
- palliative care
- chronic kidney disease
- newly diagnosed
- healthcare
- peritoneal dialysis
- prognostic factors
- minimally invasive
- systematic review
- emergency department
- risk assessment
- public health
- pain management
- cystic fibrosis
- resting state
- global health
- electronic health record
- surgical site infection