Research Priorities of Individuals and Caregivers With Lewy Body Dementia: A Web-based Survey.
Samantha K HoldenNoheli BedenfieldAngela S TaylorEce BayramChris SchwilkJori FleisherJohn DudaHolly ShillHenry L PaulsonKelly StacyJulia WoodPamela CorsentinoSharon J ShaIrene LitvanDavid J IrwinJoseph F QuinnJennifer G GoldmanKatherine AmodeoJohn-Paul TaylorBradley F BoeveMelissa J ArmstrongPublished in: Alzheimer disease and associated disorders (2023)
People with LBD and caregivers highlighted the need for research across all aspects of LBD, from pathophysiology and disease modification to prognosis, education, symptomatic treatments, and caregiver support. Funders should increase support for all aspects of LBD research to target the many needs identified by individuals and families living with LBD.