End-of-life perspectives according to family caregivers of older adults with dementia: A qualitative study.
Bárbara Pires de Andrade Lage CabralGiulia Martino ButtrosEunice M Leite BritoKarla C GiacominMarcella Guimarães AssisPublished in: Dementia (London, England) (2022)
A total of 63 family caregivers participated, 74.6% of whom were women, predominantly wives and daughters. Two themes resulted from the data analysis: (i) Different perspectives on the end of life: from death itself to a sad, painful and long grief process; and (ii) End of life in the perspective of transcendence. The meaning of the end of life was perceived in different ways by family caregivers. Understanding how they perceive and experience the end-of-life process of the older adult with dementia helps to clarify the best ways for the health professionals to approach and intervene with these families.