The conveyor belt for older people nearing the end of life.
K M HillmanAdrian G BarnettChristine BrownLeonie CallawayMagnolia CardonaHannah CarterAlison FarringtonGillian HarveyXing LeeSteven M McPhailGraves NicholasBen P WhiteNicole M WhiteLindy WillmottPublished in: Internal medicine journal (2024)
The current fallback position for the elderly frail nearing the end of life (less than 12 months to live) is hospitalisation. There is a reluctance to use the term 'terminally ill' for this population, resulting in overtreatment, overdiagnosis and management that is not consistent with the wishes of people. This is the major contributor to the so-called hospital crisis, including decreased capacity of hospitals, reduced ability to conduct elective surgery, increased attendances at emergency departments and ambulance ramping. The authors recently conducted the largest randomised study, to their knowledge, attempting to inform specialist hospital medical teams about the terminally ill status of their admitted patients. This information did not influence their clinical decisions in any way. The authors discuss the reasons why this may have occurred, such as the current avoidance of discussing death and dying by society and the concentration of healthcare workers on actively managing the acute presenting problem and ignoring the underlying prognosis in the elderly frail. The authors discuss ways of improving the management of the elderly nearing the end of life, such as more detailed goals of care discussions using the concept of shared decision-making rather than simply completing Advanced Care Decision documents. Empowering people in this way could become the most important driver of people's health care.
Keyphrases
- healthcare
- community dwelling
- palliative care
- middle aged
- end stage renal disease
- ejection fraction
- clinical trial
- health information
- newly diagnosed
- minimally invasive
- chronic kidney disease
- peritoneal dialysis
- affordable care act
- preterm infants
- emergency department
- quality improvement
- prognostic factors
- coronary artery disease
- study protocol
- randomized controlled trial
- drug induced
- case report
- gestational age
- respiratory failure
- intensive care unit
- percutaneous coronary intervention
- pain management
- chronic pain
- health insurance
- decision making
- patient reported outcomes
- adverse drug
- placebo controlled
- extracorporeal membrane oxygenation