A Qualitative Study of Patients' Experiences, Enablers and Barriers of Rheumatic Heart Disease Care in Uganda.
Hadija NalubwamaJafesi PulleJenifer AtalaRachel SarnackiMiriam NakittoRebecca NamaraAndrea BeatonRosemary KansiimeRachel MwimaEmma NdagireEmmy OkelloDavid WatkinsPublished in: Global heart (2023)
Despite several personal and community factors that support resilience, PLWRHD in Uganda experience a range of negative physical, emotional, and social consequences from their condition. Greater investment is needed in primary healthcare systems to support decentralized, patient-centered care for RHD. Implementing evidence-based interventions that prevent RHD at district level could greatly reduce the scale of human suffering. There is need to increase investment in primary prevention and tackling social determinants, to reduce the incidence of RHD in communities where the condition remains endemic.
Keyphrases
- healthcare
- mental health
- end stage renal disease
- physical activity
- quality improvement
- endothelial cells
- ejection fraction
- palliative care
- chronic kidney disease
- newly diagnosed
- rheumatoid arthritis
- prognostic factors
- climate change
- risk factors
- affordable care act
- peritoneal dialysis
- pulmonary hypertension
- social support
- social media
- health information