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Leveraging Existing Datasets to Advance Family Caregiving Research: Opportunities to Measure What Matters.

Rebecca M GoodwinRebecca L UtzCatherine E ElmoreKatherine A OrnsteinDjin L TayLee EllingtonKen R SmithCaroline E Stephens
Published in: Journal of aging & social policy (2024)
More than 17.7 million people in the U.S. care for older adults. Analyzing population datasets can increase our understanding of the needs of family caregivers of older adults. We reviewed 14 U.S. population-based datasets (2003-2023) including older adults' and caregivers' data to assess inclusion and measurement of 8 caregiving science domains, with a focus on whether measures were validated and/or unique variables were used. Challenges exist related to survey design, sampling, and measurement. Findings highlight the need for consistent data collection by researchers, state, tribal, local, and federal programs, for improved utility of population-based datasets for caregiving and aging research.
Keyphrases
  • physical activity
  • rna seq
  • palliative care
  • public health
  • electronic health record
  • healthcare
  • big data
  • single cell
  • cross sectional
  • quality improvement
  • pain management
  • chronic pain
  • drug induced
  • affordable care act