Multisite Semiautomated Clinical Data Repository for Duplication 15q Syndrome: Study Protocol and Early Uses.
Oluwaseun Jessica AjayiEbony Jeannae SmithTeeradache ViangteeravatEunice Y HuangNaga Satya V Rao NagisettyNora UrracaLaina LuskBrenda FinucaneDimitrios ArkiloJennifer YoungShafali S JesteRonald L Thibertnull nullLawrence T ReiterPublished in: JMIR research protocols (2017)
We developed a repository that can efficiently be mined for shared clinical phenotypes observed at multiple clinic sites and used as a springboard for future clinical and basic research studies.