Development of a decision support intervention for family members of adults who lack capacity to consent to trials.
Victoria ShepherdFiona WoodRichard GriffithMark SheehanKerenza HoodPublished in: BMC medical informatics and decision making (2021)
Frameworks for the development of decision aids for people considering participating in a clinical trial can be used to develop interventions for family members acting as proxy decision-makers. The decision support tool is acceptable to users. Feasibility testing and outcome measure development is required prior to any evaluation of its effectiveness.