Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder.
Serene HabayebSarah DababnahAesha JohnBrendan RichPublished in: Journal of autism and developmental disorders (2020)
Research on families' experiences raising children with Autism Spectrum Disorder (ASD) is limited in minority ethnic and cultural groups, such as the Arab American community. Twenty Arab American caregivers raising children with ASD completed online questionnaires regarding their experiences with stigma and acculturation. Nine participants completed follow-up phone interviews. Perceived stigma fell in the low to moderate range. Acculturation related to social interactions indicated slightly greater assimilation compared to separation, and slightly greater integration over marginalization. During interviews, participants discussed the impact of disability stigma, distancing from their communities, and parent gender roles. By better understanding Arab American families raising children with ASD professionals can work towards improving clinical services for these families.
Keyphrases
- mental health
- autism spectrum disorder
- mental illness
- attention deficit hyperactivity disorder
- social support
- palliative care
- young adults
- healthcare
- intellectual disability
- hiv aids
- multiple sclerosis
- primary care
- social media
- physical activity
- high intensity
- human immunodeficiency virus
- mass spectrometry
- antiretroviral therapy
- psychometric properties