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The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation into the Dutch language for the Netherlands.

Britt A E DhaenensSarah A van DijkWalter TaalD Christine NoordhoekAnna CoffeyStephen P McKennaRianne Oostenbrink
Published in: Journal of patient-reported outcomes (2024)
The Dutch PlexiQoL demonstrated excellent psychometric properties and can be reliably used to measure plexiform neurofibroma-related QoL in adults with NF1 in the Netherlands.
Keyphrases
  • psychometric properties
  • patient reported outcomes
  • signaling pathway
  • lps induced
  • autism spectrum disorder
  • oxidative stress
  • pi k akt
  • nuclear factor
  • cell proliferation
  • drug induced