Britt A E Dhaenens

Publication Activity (10 Years)

Years Active: 2021-2024
Publications (10 Years): 10

Top Topics

Psychometric Properties

Top Venues

Journal of patient-reported outcomes

Neuro-oncology practice

Clinical and translational science

European journal of human genetics : EJHG

This page only lists publications with an associated author ORCID identifier.

Publications

Britt A E Dhaenens, Günter Heimann, Annette Bakker, Marco Nievo, Rosalie E Ferner, D Gareth Evans, Pierre Wolkenstein, Jonas Leubner, Cornelia Potratz, Charlotte Carton, Uchenna Iloeje, George Kirk, Jaishri O Blakeley, Scott Plotkin, Michael J Fisher, Ae Rang Kim, Pablo Hernáiz Driever, Amedeo A Azizi, Brigitte C Widemann, Andrea M Gross, Tom Parke, Eric Legius, Rianne Oostenbrink
Platform trial design for neurofibromatosis type 1, NF2-related schwannomatosis and non-NF2-related schwannomatosis: A potential model for rare diseases. Neuro-oncology practice 11 (4) (2024)
Britt A E Dhaenens, Sarah A van Dijk, Walter Taal, D Christine Noordhoek, Anna Coffey, Stephen P McKenna, Rianne Oostenbrink
The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation into the Dutch language for the Netherlands. Journal of patient-reported outcomes 8 (1) (2024)
Britt A E Dhaenens, Sarah A van Dijk, Walter Taal, D Christine Noordhoek, Anna Coffey, Stephen P McKenna, Rianne Oostenbrink
The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation into the Dutch language for the Netherlands. Journal of patient-reported outcomes 8 (1) (2024)
Britt A E Dhaenens, Günter Heimann, Annette Bakker, Marco Nievo, Rosalie E Ferner, D Gareth Evans, Pierre Wolkenstein, Jonas Leubner, Cornelia Potratz, Charlotte Carton, Uchenna Iloeje, George Kirk, Jaishri O Blakeley, Scott Plotkin, Michael J Fisher, Ae Rang Kim, Pablo Hernáiz Driever, Amedeo A Azizi, Brigitte C Widemann, Andrea M Gross, Tom Parke, Eric Legius, Rianne Oostenbrink
Platform trial design for neurofibromatosis type 1, NF2-related schwannomatosis and non-NF2-related schwannomatosis: A potential model for rare diseases. Neuro-oncology practice 11 (4) (2024)
Britt A E Dhaenens, Sarah A van Dijk, Laura Fertitta, Walter Taal, Pierre Wolkenstein, Rianne Oostenbrink
Quality of life in individuals with neurofibromatosis type 1 associated cutaneous neurofibromas: validation of the Dutch cNF-Skindex. Journal of patient-reported outcomes 8 (1) (2024)
Britt A E Dhaenens, Sarah A van Dijk, Laura Fertitta, Walter Taal, Pierre Wolkenstein, Rianne Oostenbrink
Quality of life in individuals with neurofibromatosis type 1 associated cutaneous neurofibromas: validation of the Dutch cNF-Skindex. Journal of patient-reported outcomes 8 (1) (2024)
Britt A E Dhaenens, Sarah A van Dijk, Laura Fertitta, Walter Taal, Pierre Wolkenstein, Rianne Oostenbrink
Quality of life in individuals with neurofibromatosis type 1 associated cutaneous neurofibromas: validation of the Dutch cNF-Skindex. Journal of patient-reported outcomes 8 (1) (2024)
Britt A E Dhaenens, Sarah A van Dijk, Walter Taal, D Christine Noordhoek, Anna Coffey, Stephen P McKenna, Rianne Oostenbrink
The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation into the Dutch language for the Netherlands. Journal of patient-reported outcomes 8 (1) (2024)
Britt A E Dhaenens, Fenna Mahler, Hannah Katharine Batchelor, Pamela Dicks, Segolene Gaillard, Begonya Nafria Escalera, Annette Kopp-Schneider, Maria Alexandra Ribeiro, Matthias Schwab, Monika Sparber-Sauer, Jonas Leubner, Saskia N de Wildt, Rianne Oostenbrink
Optimizing expert and patient input in pediatric trial design: Lessons learned and recommendations from a collaboration between conect4children and European Patient-CEntric ClinicAl TRial PLatforms. Clinical and translational science (2023)
Britt A E Dhaenens, Rosalie E Ferner, Annette Bakker, Marco Nievo, Dafydd Gareth Evans, Pierre Wolkenstein, Cornelia Potratz, Scott R Plotkin, Guenter Heimann, Eric Legius, Rianne Oostenbrink
Identifying challenges in neurofibromatosis: a modified Delphi procedure. European journal of human genetics : EJHG 29 (11) (2021)