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Impact of "early intervention" parent workshops on outcomes for caregivers of children with neurodisabilities: a mixed-methods study.

Laura MillerChristine ImmsAndrea CrossKinga PozniakBridget O'ConnorRachel MartensV CavalierosRose BabicMonika Novak-PavlicMyanca RodriguesAbha BalramDebra HughesJenny ZivianiPeter L Rosenbaum
Published in: Disability and rehabilitation (2022)
ENVISAGE was feasible and acceptable for parent/caregivers. The program inspired parents to think, feel and do things differently with their child, family and the people who work with them.Implications for rehabilitationENVISAGE (ENabling VISions And Growing Expectations)-Families is a co-designed, validated parent/researcher "early intervention and orientation" program for caregivers raising a child with neurodevelopmental disabilities (NDDs).ENVISAGE-Families empowered parents' strengths-based approaches to their child, family, disability, and parenting.ENVISAGE-Families increased caregivers' confidence in parenting children with NDD's and provided them tools to support connection, collaboration, and wellbeing.Raising children with NDD can have a profound impact on caregivers, who can benefit from strengths-based, future focused supports early in their parenting experience.
Keyphrases
  • palliative care
  • young adults
  • mental health
  • randomized controlled trial
  • quality improvement