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Lived experiences of patients with distal renal tubular acidosis treated with ADV7103 and of their caregivers: a qualitative study.

Michaël AcquadroAlexia MarrelMaria A Manso-SilvánCatherine GuittetSophie JoukoffAurélia Bertholet-Thomas
Published in: Orphanet journal of rare diseases (2022)
Qualitative interviews show that dRTA and its treatment have a significant impact on QoL of patients and parents and that ADV7103 helps improve daily-life and reduces treatment burden, resulting in greater overall satisfaction of the patients and their families. Trial registration EU Clinical Trials Register, EudraCT 2013-003828-36 on the 3rd of September 2013.
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