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Funders' data-sharing policies in therapeutic research: A survey of commercial and non-commercial funders.

Jeanne Fabiola GabaMaximilian SiebertAlain DupuyDavid MoherFlorian Naudet
Published in: PloS one (2020)
This survey identified suboptimal performances of funders in setting up data-sharing policies. For those with a data-sharing policy, the implementation of the policy in study registration was limited for commercial funders and of concern for non-commercial funders. The limitations of the present study include its cross-sectional nature, since data-sharing policies are continuously changing. We call for a standardization of policies with a strong evaluation component to make sure that, when in place, these policies are effective.
Keyphrases
  • public health
  • electronic health record
  • cross sectional
  • healthcare
  • social media
  • health information
  • big data
  • mental health
  • primary care
  • machine learning
  • data analysis
  • artificial intelligence
  • deep learning