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Body weight, behaviours of concern, and social contact in adults and adolescents with Prader-Willi syndrome in full-time care services: Findings from pooled international archival data.

Brian M HughesAnthony HollandNorbert Hödebeck-StuntebeckLynn GarrickAnthony P GoldstoneMark ListerCraig MooreMarguerite Hughes
Published in: Orphanet journal of rare diseases (2024)
We conclude that full-time care services have a high likelihood of enhancing the lives of people with PWS within one year with long-lasting benefits, especially if those services are exclusive and specialised around the particular needs of PWS.
Keyphrases
  • healthcare
  • body weight
  • affordable care act
  • mental health
  • primary care
  • palliative care
  • young adults
  • quality improvement
  • physical activity
  • health insurance
  • growth hormone
  • randomized controlled trial