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"I didn't have anything to decide, I wanted to help my kids"-An interview-based study of consent procedures for sampling human biological material for genetic research in rural Pakistan.

Nana Cecilie Halmsted KongsholmJesper LassenPeter Sandøe
Published in: AJOB empirical bioethics (2018)
We argue that while building and maintaining trusting relationships in research is important-not least in developing countries-strategies that serve this endeavor should be supplemented with efforts to ensure proper provision and understanding of relevant information, specifically about the nature of research and measures for individual consent and opt-out.
Keyphrases
  • endothelial cells
  • south africa
  • induced pluripotent stem cells
  • palliative care
  • genome wide
  • pluripotent stem cells
  • tertiary care
  • health information
  • quality improvement
  • copy number
  • dna methylation
  • healthcare