Adherence to hydroxyurea, health-related quality of life domains and attitudes towards a smartphone app among Irish adolescents and young adults with sickle cell disease.

Helen FogartyAlan GaulSaifullah SyedNatalija AleksejenkoRosena GeogheganHelena ConroyEdel CramptonNoel NgwenyaEmma TuohyCorrina McMahon

Published in: Irish journal of medical science (2021)

Representing over 10% of the Irish SCD population, our survey provides novel and valuable insights into medication adherence and HRQOL domains. Preferred app features may inform future technology-based interventions to improve medication adherence in SCD and other chronic health conditions.

Keyphrases

general practice
public health
healthcare
mental health
physical activity
current status
cross sectional
sickle cell disease
health information
primary care
health promotion
type diabetes
skeletal muscle
metabolic syndrome
weight loss