Patient Journey Toward a Diagnosis of Light Chain Amyloidosis in a National Sample: Cross-Sectional Web-Based Study.

Xuelin Dou Yang Liu Aijun Liao Yuping Zhong Wenhui Lei Lihong Liu Canchan Cui Xiaohong Wang Jin Lu

Published in: JMIR formative research (2023)

Chinese patients with AL amyloidosis experienced referrals during their journey toward accurate diagnosis. Increasing awareness of the disease and early referral to a specialized center with expertise may reduce delayed diagnosis and improve patient management.

Keyphrases

cross sectional
case report
palliative care
mass spectrometry