Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form.
Coretta Melissa JeneretteJulia A O'BrienCheedy JajaEvanilda Souza de Santana CarvalhoCheryl BrewerRonald L HickmanPublished in: Western journal of nursing research (2022)
Health-related stigma, a form of devaluation related to a health condition, is common in individuals with sickle cell disease (SCD). Pain is the hallmark symptom of SCD, and health-related stigma is often described during care-seeking for pain management. Few published instruments measure health-related stigma in individuals with SCD. This study builds on the psychometrics of the 30- and 40-item Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS). In a sample of 197 adults with SCD, the results support the reliability and validity of a 21-item scale, the SCD-HRSS-Short Form, with an overall Cronbach's alpha reliability of 0.91 and discriminant validity with the PROMIS-29 subscales (anxiety, depressive symptoms, pain interference, physical fatigue, sleep, and role satisfaction). A shorter yet reliable and valid scale may decrease the burden for this underrepresented, minoritized population while still providing important information regarding their experiences of stigmatization.
Keyphrases
- mental health
- pain management
- sickle cell disease
- mental illness
- social support
- hiv aids
- chronic pain
- depressive symptoms
- sleep quality
- healthcare
- physical activity
- public health
- health information
- neuropathic pain
- palliative care
- systematic review
- patient reported outcomes
- health insurance
- spinal cord injury
- human health
- drug induced
- meta analyses