The Swedish motor neuron disease quality registry.
Elisa LonginettiAmanda Regodón WallinKristin SamuelssonRayomand PressAnne ZachauLars-Olof RonneviMarie KierkegaardPeter M AndersenJan HillertFang FangCaroline IngrePublished in: Amyotrophic lateral sclerosis & frontotemporal degeneration (2018)
Main strengths of the MND Quality Registry are its clinical, quantitative, qualitative, and prospective nature, providing the researchers potential means of identifying appropriate candidates for clinical trials and other research projects, as well as assuring to the patients an effective and adequate time spent on-site with the healthcare professionals.