Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial.
Julie Lounds TaylorRobert M HodappMeghan M BurkeSydney N Waitz-KudlaCarol RabideauPublished in: Journal of autism and developmental disorders (2017)
This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services-the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N = 20) or wait-list control (N = 21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered.
Keyphrases
- randomized controlled trial
- mental health
- healthcare
- study protocol
- primary care
- autism spectrum disorder
- physical activity
- young adults
- multiple sclerosis
- childhood cancer
- attention deficit hyperactivity disorder
- intellectual disability
- combination therapy
- high school
- clinical trial
- adipose tissue
- skeletal muscle
- health insurance
- meta analyses
- medical students
- smoking cessation