Patients' and parents' perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal.

Maud M van Muilekom Lorynn Teela Hedy A van OersJohannes B van GoudoeverMartha A GrootenhuisLotte Haverman

Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2021)

Patients and parents are generally satisfied with KLIK, however, points of improvement were mentioned. These are currently being addressed by e.g., upgrading the KLIK website, implementing PROMIS item banks in KLIK to reduce irrelevancy and repetitiveness of PROMs, and implementation strategies to improve the discussion-rate. In this way, implementation of the KLIK PROM portal can be further optimized, with the ultimate goal to improve quality of care.

Keyphrases

patient reported outcomes
quality improvement
end stage renal disease
healthcare
primary care
ejection fraction
newly diagnosed
clinical practice
chronic kidney disease
prognostic factors
peritoneal dialysis
palliative care
pain management
chronic pain
psychometric properties