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Sharing real-world data for public benefit: a qualitative exploration of stakeholder views and perceptions.

Susan Kathryn BaxterMatthew FranklinAnnette HaywoodTony StoneMonica Catherine JonesSuzanne M MasonKamil Sterniczuk
Published in: BMC public health (2023)
The Covid-19 pandemic context and changes to organisational structures in the health service in England have provided opportunities to address data sharing challenges. Change at national and local level is required, within current job roles and generating new jobs roles focused on the use and sharing of real-world data. The study suggests that actions can be taken to unlock the potential of real-world data for public health benefit, and provides a series of recommendations at a national level, for organisational leaders, those in data roles and those in public engagement roles.
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