Long-Term Observation of Patients With Cancer - an Entity-Independent Registry for Healthcare and Translational Research at the University Medicine Dresden (Cancer-Reg-VT).
Thomas DatzmannOlaf SchofferJochen SchmittHeiko BöhmeJohannes FritzmannMarius DistlerUlrike UbbelohdeEsther Giehl-BrownTjark HenkeMechthild KrauseHanno GlimmMartin BornhäuserJürgen WeitzPublished in: Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) (2023)
With the registry, previously missing evidence on the effectiveness, safety and costs of diagnostic and therapeutic measures can be made, taking into account long-term and patient-reported outcomes of routine care. The data potentially allow for the identification of barriers to and facilitators of innovative promising cancer diagnostics and therapies. They also enable generation of scientifically relevant hypotheses in the field of translational and outcomes research.
Keyphrases
- healthcare
- patient reported outcomes
- papillary thyroid
- squamous cell
- randomized controlled trial
- systematic review
- palliative care
- type diabetes
- lymph node metastasis
- metabolic syndrome
- big data
- young adults
- affordable care act
- health information
- health insurance
- chronic pain
- social media
- pain management
- insulin resistance