Measuring the Patient Experience in Rare Disorders: Benefit of Pragmatic Mixed-Methods Research in NUT Carcinoma.
Anna CieslukMaarten VoorhaarLouise BarrettJessica BaldasaroIngolf GriebschPatrick MarquisPublished in: Oncology and therapy (2022)
Our mixed-methods research used pragmatic solutions to collect patient experience data and provides an evidence base to inform PCOM in clinical programs in this rapidly progressing rare cancer with high unmet need.