The Burden of Caring for Individuals with Tuberous Sclerosis Complex (TSC) Who Experience Epileptic Seizures: A Descriptive UK Survey.

Hanna SkrobanskiKishan VyasSally BowditchLena HubigEdward DziadulewiczLouise FishPooja TakharSiu Hing Lo

Published in: PharmacoEconomics - open (2023)

These findings highlight the role of epileptic seizures and neuropsychiatric disorders in the considerable burden of TSC on primary caregivers and families.

Keyphrases

cross sectional
temporal lobe epilepsy
palliative care
risk factors