Models of outpatient neuropalliative care for patients with amyotrophic lateral sclerosis.
Joel N PhillipsJessica BesbrisLaura A FosterNeha M KramerSamuel MaiserAmbereen Kurwa MehtaPublished in: Neurology (2020)
NPC is provided to patients with ALS heterogeneously throughout the United States with some variation in services and delivery, but all clinics are addressing similar core needs. Given the poor prognosis and high PC needs, those with ALS are the ideal patients to receive NPC. Future studies are necessary given the paucity of data available to determine best practices and to better define meaningful outcomes.
Keyphrases
- amyotrophic lateral sclerosis
- poor prognosis
- healthcare
- primary care
- long non coding rna
- end stage renal disease
- ejection fraction
- newly diagnosed
- chronic kidney disease
- palliative care
- peritoneal dialysis
- type diabetes
- patient reported outcomes
- pain management
- skeletal muscle
- weight loss
- insulin resistance
- case control