Implementation of thyroid eye disease registry in Iran: rationale and research protocol.
Shadi AkbarianAbbas SheikhtaheriFarid KhorramiHossein GhahvechianNasser KarimiMohsen Bahmani KashkouliPublished in: Orphanet journal of rare diseases (2024)
Iran's TED registry provides practitioners with comprehensive data on natural history and phenotype variations in clinical features and outcomes. It facilitates patient recruitment and, consequently, earlier diagnosis on a large scale which helps improve treatment and quality of life for patients.
Keyphrases
- primary care
- end stage renal disease
- ejection fraction
- newly diagnosed
- healthcare
- randomized controlled trial
- clinical trial
- prognostic factors
- case report
- electronic health record
- type diabetes
- metabolic syndrome
- patient reported outcomes
- machine learning
- general practice
- big data
- combination therapy
- patient reported