"Weighing the Pros and Cons of Everything": A Qualitative Descriptive Study Exploring Perspectives About Living Donor Kidney Transplantation From Parents of Chinese Canadian Pediatric Patients With Chronic Kidney Disease.
Sarah J PolEnid K SelkirkAlameen DamerIstvan MucsiSusan AbbeyBeth EdwardsKenneth FungJagbir GillPaula NevesSuk Yin NgRulan S ParekhLinda WrightMinglin WuSamantha J AnthonyPublished in: Canadian journal of kidney health and disease (2024)
Parents in this study felt that they had access to the necessary evidence-based information to make an informed decision about the choice of DDKT versus LDKT for their child. Participant narratives described feeling isolated within cultural communities of family and friends and participants' suggestion of benefiting from increased support may guide future research directions. Practitioners can offer direct and indirect support to families, with recognition of the importance of cultural values and family-centered care on decision-making within families. Opportunities are needed for accessible, virtual social support platforms to increase parental feelings of culturally mediated peer support from parents who share similar experiences.