A Web-Based Peer-Patient Navigation Program (Compassionate Online Navigation to Enhance Care Transitions) for Youth Living With Childhood-Acquired Disabilities Transitioning From Pediatric to Adult Care: Qualitative Descriptive Study.
Kristina Marie KokoreliasTin-Suet Joan LeeMark Theodore BayleyEmily SetoAlene ToulanyMichelle L A NelsonGina DimitropoulosMelanie PennerRobert SimpsonSarah Elizabeth Patricia MuncePublished in: JMIR pediatrics and parenting (2024)
Web-based patient navigation programs such as CONNECT may deliver peer support that can improve the quality and experience of care for youth, and their caregivers, transitioning from pediatric to adult care through personalized support, health care monitoring, and health and social care resources. Future studies are needed to test the feasibility, acceptability, usability, use, and effectiveness of CONNECT among youth with childhood-onset disabilities.