Common patient-reported outcomes across ICHOM Standard Sets: the potential contribution of PROMIS®.
Caroline B TerweeMarloes ZuidgeestHarald E VonkemanDavid CellaLotte HavermanLeo D RoordaPublished in: BMC medical informatics and decision making (2021)
Considerable overlap was found in PROs across ICHOM Standard Sets, and large differences in terminology used and PROMs recommended, even for the same PROs. We recommend a more universal and standardized approach to the selection of PROs and PROMs. Such an approach, focusing on a set of core PROs for all patients, measured with a system like PROMIS, may provide more opportunities for patient-centered care and facilitate the uptake of Standard Sets in clinical practice.