Caroline B Terwee (Caroline Terwee, C B Terwee)

Publication Activity (10 Years)

Years Active: 2016-2024
Publications (10 Years): 53

Top Topics

Randomized Controlled Trial

Systematic Review

Patients Undergoing

Psychometric Properties

Top Venues

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Journal of speech, language, and hearing research : JSLHR

Journal of patient-reported outcomes

Health and quality of life outcomes

This page only lists publications with an associated author ORCID identifier.

Publications

Ellen Bernadette Maria Elsman, Lidwine B Mokkink, Inger L Abma, Olalekan Lee Aiyegbusi, Alessandro Chiarotto, Kirstie L Haywood, Karen Matvienko-Sikar, Daniëlla M Oosterveer, Jan J M Pool, Ilse E J Swinkels-Meewisse, Martin Offringa, Caroline B Terwee
Methodological quality of 100 recent systematic reviews of health-related outcome measurement instruments: an overview of reviews. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Inger N Sierevelt, Paulien M van Kampen, Caroline B Terwee, Peter A Nolte, Gino M M J Kerkhoffs, Daniel Haverkamp, null null
The minimal important change is not a universal fixed value across diagnoses when using the FAOS and FAAM in patients undergoing elective foot and ankle surgery. Knee surgery, sports traumatology, arthroscopy : official journal of the ESSKA (2024)
Eline Alons, Laurien Brauner, Margreet Luinge, Caroline B Terwee, Lizet van Ewijk, Ellen Gerrits
Identifying Relevant Concepts for the Development of a Communicative Participation Item Bank for Children and Adolescents: A Systematic Review of Existing Instruments. Journal of speech, language, and hearing research : JSLHR (2024)
Nicole Ter Wal, Caroline B Terwee, Johanna M A Visser-Meily, Eline Alons, Lotti Dijkhuis, Ellen Gerrits, Lizet van Ewijk
Development and validation of MyCommunication-Adults, a self-report communicative participation measure. International journal of language & communication disorders (2024)
Ellen Bernadette Maria Elsman, Lidwine B Mokkink, Caroline B Terwee, Dorcas E Beaton, Joel J Gagnier, Andrea C Tricco, Ami Baba, Nancy J Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie W Farmer, Kirstie L Haywood, Karolin Rose Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (8) (2024)
Ellen Bernadette Maria Elsman, Lidwine B Mokkink, Caroline B Terwee, Dorcas E Beaton, Joel J Gagnier, Andrea C Tricco, Ami Baba, Nancy J Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie W Farmer, Kirstie L Haywood, Karolin Rose Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. Health and quality of life outcomes 22 (1) (2024)
Ellen Bernadette Maria Elsman, Lidwine B Mokkink, Caroline B Terwee, Dorcas E Beaton, Joel J Gagnier, Andrea C Tricco, Ami Baba, Nancy J Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie W Farmer, Kirstie L Haywood, Karolin Rose Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. Health and quality of life outcomes 22 (1) (2024)
Guido L Williams, Gerard Flens, Caroline B Terwee, Edwin de Beurs, Philip Spinhoven, Muirne C S Paap
Extending the PROMIS item bank "ability to participate in social roles and activities": a psychometric evaluation using IRT. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Ellen Bernadette Maria Elsman, Lidwine B Mokkink, Caroline B Terwee, Dorcas E Beaton, Joel J Gagnier, Andrea C Tricco, Ami Baba, Nancy J Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie W Farmer, Kirstie L Haywood, Karolin Rose Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. Health and quality of life outcomes 22 (1) (2024)
Guido L Williams, Gerard Flens, Caroline B Terwee, Edwin de Beurs, Philip Spinhoven, Muirne C S Paap
Extending the PROMIS item bank "ability to participate in social roles and activities": a psychometric evaluation using IRT. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (8) (2024)
Guido L Williams, Gerard Flens, Caroline B Terwee, Edwin de Beurs, Philip Spinhoven, Muirne C S Paap
Extending the PROMIS item bank "ability to participate in social roles and activities": a psychometric evaluation using IRT. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (8) (2024)
Ellen Bernadette Maria Elsman, Lidwine B Mokkink, Caroline B Terwee, Dorcas E Beaton, Joel J Gagnier, Andrea C Tricco, Ami Baba, Nancy J Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie W Farmer, Kirstie L Haywood, Karolin Rose Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (8) (2024)
Ellen Bernadette Maria Elsman, Lidwine B Mokkink, Caroline B Terwee, Dorcas E Beaton, Joel J Gagnier, Andrea C Tricco, Ami Baba, Nancy J Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie W Farmer, Kirstie L Haywood, Karolin Rose Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (8) (2024)
Eline Alons, Laurien Brauner, Margreet Luinge, Caroline B Terwee, Lizet van Ewijk, Ellen Gerrits
Identifying Relevant Concepts for the Development of a Communicative Participation Item Bank for Children and Adolescents: A Systematic Review of Existing Instruments. Journal of speech, language, and hearing research : JSLHR 67 (4) (2024)
Eline Alons, Laurien Brauner, Margreet Luinge, Caroline B Terwee, Lizet van Ewijk, Ellen Gerrits
Identifying Relevant Concepts for the Development of a Communicative Participation Item Bank for Children and Adolescents: A Systematic Review of Existing Instruments. Journal of speech, language, and hearing research : JSLHR 67 (4) (2024)
Lidwine B Mokkink, Ellen Bernadette Maria Elsman, Caroline B Terwee
COSMIN guideline for systematic reviews of patient-reported outcome measures version 2.0. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Ellen Bernadette Maria Elsman, Lidwine B Mokkink, Caroline B Terwee, Dorcas E Beaton, Joel J Gagnier, Andrea C Tricco, Ami Baba, Nancy J Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie W Farmer, Kirstie L Haywood, Karolin Rose Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Inger N Sierevelt, Paulien M van Kampen, Caroline B Terwee, Peter A Nolte, Gino M M J Kerkhoffs, Daniel Haverkamp, null null
The minimal important change is not a universal fixed value across diagnoses when using the FAOS and FAAM in patients undergoing elective foot and ankle surgery. Knee surgery, sports traumatology, arthroscopy : official journal of the ESSKA 32 (9) (2024)
Ellen Bernadette Maria Elsman, Lidwine B Mokkink, Caroline B Terwee, Dorcas E Beaton, Joel J Gagnier, Andrea C Tricco, Ami Baba, Nancy J Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie W Farmer, Kirstie L Haywood, Karolin Rose Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. Journal of patient-reported outcomes 8 (1) (2024)
Guido L Williams, Gerard Flens, Caroline B Terwee, Edwin de Beurs, Philip Spinhoven, Muirne C S Paap
Extending the PROMIS item bank "ability to participate in social roles and activities": a psychometric evaluation using IRT. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (8) (2024)
Daniëlla M Oosterveer, Winke van Meijeren-Pont, Henk J Arwert, Caroline B Terwee, Thea P M Vliet Vlieland
The psychometric properties of the PROMIS® profile CAT in people with stroke. Topics in stroke rehabilitation (2024)
Ellen Bernadette Maria Elsman, Lidwine B Mokkink, Caroline B Terwee, Dorcas E Beaton, Joel J Gagnier, Andrea C Tricco, Ami Baba, Nancy J Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie W Farmer, Kirstie L Haywood, Karolin Rose Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. Journal of patient-reported outcomes 8 (1) (2024)
Ellen Bernadette Maria Elsman, Lidwine B Mokkink, Caroline B Terwee, Dorcas E Beaton, Joel J Gagnier, Andrea C Tricco, Ami Baba, Nancy J Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie W Farmer, Kirstie L Haywood, Karolin Rose Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. Journal of patient-reported outcomes 8 (1) (2024)
Nicole Ter Wal, Lizet van Ewijk, Lotti Dijkhuis, Johanna M A Visser-Meily, Caroline B Terwee, Ellen Gerrits
Everyday Barriers in Communicative Participation According to People With Communication Problems. Journal of speech, language, and hearing research : JSLHR 66 (3) (2023)
Nicole Ter Wal, Lizet van Ewijk, Lotti Dijkhuis, Johanna M A Visser-Meily, Caroline B Terwee, Ellen Gerrits
Everyday Barriers in Communicative Participation According to People With Communication Problems. Journal of speech, language, and hearing research : JSLHR 66 (3) (2023)
Nicole Ter Wal, Lizet van Ewijk, Lotti Dijkhuis, Johanna M A Visser-Meily, Caroline B Terwee, Ellen Gerrits
Everyday Barriers in Communicative Participation According to People With Communication Problems. Journal of speech, language, and hearing research : JSLHR 66 (3) (2023)
Mark A Dubbelman, Merel C Postema, Roos J Jutten, John E Harrison, Craig W Ritchie, André Aleman, Frank Jan de Jong, Benjamin D Schalet, Caroline B Terwee, Wiesje Maria van der Flier, Philip Scheltens, Sietske A M Sikkes
What's in a score: A longitudinal investigation of scores based on item response theory and classical test theory for the Amsterdam Instrumental Activities of Daily Living Questionnaire in cognitively normal and impaired older adults. Neuropsychology (2023)
Caroline B Terwee
Common measures or common metrics? the value of IRT-based common metrics. Journal of patient-reported outcomes 7 (1) (2023)
Nicole Ter Wal, Lizet van Ewijk, Lotti Dijkhuis, Johanna M A Visser-Meily, Caroline B Terwee, Ellen Gerrits
Everyday Barriers in Communicative Participation According to People With Communication Problems. Journal of speech, language, and hearing research : JSLHR (2023)
Caroline B Terwee, Esmee M van der Willik, Fenna van Breda, Brigit C van Jaarsveld, Marlon van de Putte, Isabelle W Jetten, Friedo W Dekker, Yvette Meuleman, Frans J van Ittersum
Responsiveness and minimal important change of seven PROMIS computerized adaptive tests (CAT) in patients with advanced chronic kidney disease. Journal of patient-reported outcomes 7 (1) (2023)
Caroline B Terwee, Petra J M Elders, Marieke T Blom, Joline Wilhelma Johanna Beulens, Olaf Rolandsson, Alizé A Rogge, Matthias Rose, Nicola L Harman, Paula R Williamson, François Pouwer, Lidwine B Mokkink, Femke Rutters
Patient-reported outcomes for people with diabetes: what and how to measure? A narrative review. Diabetologia (2023)
Ellen Bernadette Maria Elsman, Leo D Roorda, Nynke Smidt, Henrica C W de Vet, Caroline B Terwee
Measurement properties of the Dutch PROMIS-29 v2.1 profile in people with and without chronic conditions. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 31 (12) (2022)
Caroline B Terwee, Leo D Roorda
Country-specific reference values for PROMIS ® pain, physical function and participation measures compared to US reference values. Annals of medicine 55 (1) (2022)
Caroline B Terwee, Raphaele R L van Litsenburg, Ellen B M Elsman, Leo D Roorda
Psychometric properties and reference values of the Patient-Reported Outcomes Measurement Information System (PROMIS) sleep item banks in the Dutch general population. Journal of sleep research (2022)
Femke Rutters, Ellen Bernadette Maria Elsman, Lenka Groeneveld, Marlous Langendoen-Gort, Lidwine B Mokkink, Caroline B Terwee
Challenges in Measuring What Matters to Patients With Diabetes. Comment on "Measurement Properties of Patient-Reported Outcome Measures for Diabetes: Systematic Review". Journal of medical Internet research 24 (3) (2022)
Caroline B Terwee, Petra J M Elders, Marlous Langendoen-Gort, Ellen Bernadette Maria Elsman, Cecilia A C Prinsen, Amber A W A van der Heijden, Maartje de Wit, Joline Wilhelma Johanna Beulens, Lidwine B Mokkink, Femke Rutters
Content Validity of Patient-Reported Outcome Measures Developed for Assessing Health-Related Quality of Life in People with Type 2 Diabetes Mellitus: a Systematic Review. Current diabetes reports 22 (9) (2022)
Marlous Langendoen-Gort, Lenka Groeneveld, Cecilia A C Prinsen, Joline Wilhelma Johanna Beulens, Petra J M Elders, Ilana Halperin, Geetha Mukerji, Caroline B Terwee, Femke Rutters
Patient-reported outcome measures for assessing health-related quality of life in people with type 2 diabetes: A systematic review. Reviews in endocrine & metabolic disorders 23 (5) (2022)
Mark A Dubbelman, Merike Verrijp, Caroline B Terwee, Roos J Jutten, Merel C Postema, Frederik Barkhof, Bart N M Berckel, Freek Gillissen, Vivianne Teeuwen, Charlotte E Teunissen, Wiesje Maria van der Flier, Philip Scheltens, Sietske A M Sikkes
Determining the Minimal Important Change of Everyday Functioning in Dementia: Pursuing Clinical Meaningfulness. Neurology 99 (9) (2022)
Maud M van Muilekom, Michiel A J Luijten, Raphaele R L van Litsenburg, Martha A Grootenhuis, Caroline B Terwee, Lotte Haverman
Psychometric properties of the Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Anger Scale in the Dutch general population. Psychological assessment (2021)
Caroline B Terwee, Marloes Zuidgeest, Harald E Vonkeman, David Cella, Lotte Haverman, Leo D Roorda
Common patient-reported outcomes across ICHOM Standard Sets: the potential contribution of PROMIS®. BMC medical informatics and decision making 21 (1) (2021)
Erna C van Balen, Lotte Haverman, Shermarke Hassan, Elisabeth M Taal, Cees Smit, Mariëtte H E Driessens, Erik A M Beckers, Michiel Coppens, Jeroen C J Eikenboom, Hélène L Hooimeijer, Frank W G Leebeek, Lize F D van Vulpen, Saskia E M Schols, Caroline B Terwee, Frits Richard Rosendaal, Johanna van der Bom, Samantha C Gouw
Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands. Journal of thrombosis and haemostasis : JTH 19 (11) (2021)
Leonardo Pellicciari, Alessandro Chiarotto, Emanuele Maria Giusti, Martine H P Crins, Leo D Roorda, Caroline B Terwee
Psychometric properties of the patient-reported outcomes measurement information system scale v1.2: global health (PROMIS-GH) in a Dutch general population. Health and quality of life outcomes 19 (1) (2021)
Gerard Flens, Caroline B Terwee, Niels Smits, Guido L Williams, Philip Spinhoven, Leo D Roorda, Edwin de Beurs
Construct validity, responsiveness, and utility of change indicators of the Dutch-Flemish PROMIS item banks for depression and anxiety administered as computerized adaptive test (CAT): A comparison with the Brief Symptom Inventory (BSI). Psychological assessment (2021)
Petra T Rausch-Koster, A J van der Ham, Caroline B Terwee, Frank D Verbraak, Gerardus H M B van Rens, Ruth Marie Antoinette van Nispen
Translation and content validity of the Dutch Impact of Vision Impairment questionnaire assessed by Three-Step Test-Interviewing. Journal of patient-reported outcomes 5 (1) (2021)
Caroline B Terwee, John Devin Peipert, Robert Chapman, Jin-Shei Lai, Berend Terluin, David Cella, Philip Griffith, Lidwine B Mokkink
Minimal important change (MIC): a conceptual clarification and systematic review of MIC estimates of PROMIS measures. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 30 (10) (2021)
Ellen Bernadette Maria Elsman, Leo D Roorda, Martine H P Crins, Maarten Boers, Caroline B Terwee
Dutch reference values for the Patient-Reported Outcomes Measurement Information System Scale v1.2 - Global Health (PROMIS-GH). Journal of patient-reported outcomes 5 (1) (2021)
Astrid de Wind, Allard J van der Beek, Edwin J Boezeman, Rosalie Swenneker, Johannes R Anema, Angela G E M de Boer, Heleen Beckerman, Jan L Hoving, Karen Nieuwenhuijsen, Micky Scharn, Mariska Stam, Caroline B Terwee, Monique H W Frings-Dresen, Sietske J Tamminga
A qualitative study investigating the meaning of participation to improve the measurement of this construct. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 28 (8) (2019)
Cecilia A C Prinsen, Phyllis I Spuls, Caroline B Terwee
By using a core outcome set we measure what matters to patients. The British journal of dermatology 178 (3) (2019)
Nancy J Butcher, Andrea Monsour, Emma J Mew, Peter Szatmari, Agostino Pierro, Lauren E Kelly, Mufiza Farid-Kapadia, Alyssandra Chee-A-Tow, Leena Saeed, Suneeta Monga, Wendy Ungar, Caroline B Terwee, Sunita Vohra, Dean A Fergusson, Lisa M Askie, Paula R Williamson, An-Wen Chan, David Moher, Martin Offringa
Improving outcome reporting in clinical trial reports and protocols: study protocol for the Instrument for reporting Planned Endpoints in Clinical Trials (InsPECT). Trials 20 (1) (2019)
Cecilia A C Prinsen, Lidwine B Mokkink, Lex M Bouter, Jordi Alonso, Donald L Patrick, Henrica C W de Vet, Caroline B Terwee
COSMIN guideline for systematic reviews of patient-reported outcome measures. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 27 (5) (2018)
Jojanneke A M C van Kooten, Raphaele R L van Litsenburg, Whitney R Yoder, Gertjan J L Kaspers, Caroline B Terwee
Validation of the PROMIS Sleep Disturbance and Sleep-Related Impairment item banks in Dutch adolescents. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 27 (7) (2018)
Caroline B Terwee, M H P Crins, M Boers, H C W de Vet, L D Roorda
Validation of two PROMIS item banks for measuring social participation in the Dutch general population. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 28 (1) (2018)
Eva van der Meij, Judith A F Huirne, Esther V A Bouwsma, Johanna Maria van Dongen, Caroline B Terwee, Peter M van de Ven, Chantal M den Bakker, Suzan van der Meij, Wilhelmina M van Baal, Wouter K G Leclercq, Peggy Maj Geomini, Esther C J Consten, Steven E Schraffordt Koops, Paul J M van Kesteren, Hein Bac Stockmann, A Dorien Ten Cate, Paul Hp Davids, Petrus C Scholten, Baukje van den Heuvel, Frederieke G Schaafsma, Wilhelmus Jhj Meijerink, Hendrik Jaap Bonjer, Johannes R Anema
Substitution of Usual Perioperative Care by eHealth to Enhance Postoperative Recovery in Patients Undergoing General Surgical or Gynecological Procedures: Study Protocol of a Randomized Controlled Trial. JMIR research protocols 5 (4) (2016)