Patient and Caregiver Perspectives on Care-Seeking During a Vaso-Occlusive Crisis in Sickle Cell Disease: Results from Qualitative Interviews in Canada.
Neha DurgamTriza BrionHannah B LewisBiba TingaWilson SanonMark LundieChantal CadieuxPublished in: Patient preference and adherence (2023)
This study identified important institutional and subject-level considerations involved in care-seeking decisions. Most importantly, this study highlights the racial stigma faced by many patients when care-seeking in the ER and the lack of care protocol implemented, which hinders care-seeking in a dedicated medical facility. From the patient perspective, these are clear gaps to fill to encourage patients to seek and receive the care they deserve.
Keyphrases
- healthcare
- palliative care
- sickle cell disease
- quality improvement
- end stage renal disease
- mental health
- newly diagnosed
- pain management
- chronic kidney disease
- randomized controlled trial
- affordable care act
- case report
- peritoneal dialysis
- depressive symptoms
- patient reported outcomes
- hepatitis c virus
- hiv infected
- human immunodeficiency virus
- breast cancer cells
- antiretroviral therapy
- endovascular treatment