EoE CONNECT, the European Registry of Clinical, Environmental, and Genetic Determinants in Eosinophilic Esophagitis: rationale, design, and study protocol of a large-scale epidemiological study in Europe.
Alfredo J LucendoCecilio SantanderEdoardo SavarinoDanila GuagnozziIsabel Pérez-MartínezAntonia PerellóAntonio Guardiola-ArévaloJesús BarrioMaría Elena Betoré-GlariaCarolina Gutiérrez-JunqueraConstanza Ciriza de Los RíosFrancesca RaccaSonia Fernández-FernándezLeonardo Blas-JhonAnne Lund KrarupSusana de la RivaJuan E NavesSilvia CarriónJuan Armando Rodríguez OballeNatalia García-MoralesSonsoles Tamarit-SebastiánPilar NavarroÁngel AriasEmilio J Laserna-MendietaPublished in: Therapeutic advances in gastroenterology (2022)
This prospective registry study will provide important information on the epidemiological and clinical aspects of EoE and evidence as to the real-world and long-term effectiveness and safety of therapy. These data will potentially be a vital benchmark for planning future EoE health care services in Europe.