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The experiences of caring for disabled older adults in long-term: A qualitative study from the perspective of spousal caregivers.

Lingli YangWei WeiYanni WuShunfang ZhuXiaoli ZengRun WangMi ZhangXiaolu LinChunlan Zhou
Published in: Chronic illness (2023)
Spouses took responsibility for providing care for their disabled partners regardless of their willingness. They had positive experiences while providing care, but negative experiences were dominant, especially for spouses of severely disabled older adults. Spouses are always perfect in caregiving roles, although they may also need medical assistance. To prevent a decline in spousal caregivers' quality of life and relieve their care burdens, health care providers should support them as soon as possible or offer formal care for disabled older adults. It is necessary to intervene considering disabled older adults and their spousal caregivers as a unit to empower their confidence in coping with life together.
Keyphrases
  • healthcare
  • palliative care
  • physical activity
  • quality improvement
  • mental health
  • affordable care act
  • pain management
  • depressive symptoms
  • social support
  • social media