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Development and validation of a novel informational booklet for pediatric long-term ventilation decision support.

Jeffrey D EdwardsHoward B PanitchMaureen GeorgeAnne-Marie CirrillaEli GrunsteinJoanne WolfeJudith E NelsonRachel L Miller
Published in: Pediatric pulmonology (2020)
The LTV booklet was rigorously developed and favorably evaluated. It offers a resource to improve patient/family knowledge, supplement shared decision-making, and reduce decisional conflict around LTV decisions. Future studies should validate it in other settings and further study its effectiveness.
Keyphrases
  • randomized controlled trial
  • healthcare
  • systematic review
  • case report
  • intensive care unit
  • mechanical ventilation
  • young adults
  • respiratory failure