Development and validation of a novel informational booklet for pediatric long-term ventilation decision support.
Jeffrey D EdwardsHoward B PanitchMaureen GeorgeAnne-Marie CirrillaEli GrunsteinJoanne WolfeJudith E NelsonRachel L MillerPublished in: Pediatric pulmonology (2020)
The LTV booklet was rigorously developed and favorably evaluated. It offers a resource to improve patient/family knowledge, supplement shared decision-making, and reduce decisional conflict around LTV decisions. Future studies should validate it in other settings and further study its effectiveness.