Report of the Skin Research Workgroups From the IDEOM Breakout at the GRAPPA 2022 Annual Meeting.
Melissa P ZundellMichael J WoodburyKathryn LeeLourdes Maria Perez-ChadaApril W ArmstrongVibeke StrandJoseph Frank MerolaAlice B GottliebPublished in: The Journal of rheumatology (2023)
The International Dermatology Outcome Measures (IDEOM) organization presented an update on its progress related to patient-centered outcome measures for psoriasis (PsO) and psoriatic arthritis (PsA) at the 2022 annual meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA). The Musculoskeletal (MSK) Symptoms working group presented an update on the development of the IDEOM Musculoskeletal Questionnaire (IDEOM MSK-Q). The IDEOM MSK-Q is a patient-reported outcome measure intended to capture MSK symptoms and describe their intensity and impact on health-related quality of life in patients with psoriatic disease. IDEOM also presented the progress of the integration of the Psoriasis Epidemiology Screening Tool (PEST) and Psoriatic Arthritis Impact of Disease (PsAID) questionnaires into the Epic electronic health record system. This will allow for automated PsA screening and symptom measurement in the hopes of improving disease detection and treat-to-target strategies. The Treatment Satisfaction working group discussed the development of the DermSat-7, a 7-item treatment satisfaction questionnaire specific for dermatological conditions. The DermSat-7 is currently being validated in a multicenter study of patients with PsO.
Keyphrases
- electronic health record
- prostate cancer
- psychometric properties
- patient reported outcomes
- cross sectional
- rheumatoid arthritis
- deep learning
- high throughput
- combination therapy
- risk factors
- clinical decision support
- depressive symptoms
- patient reported
- systemic lupus erythematosus
- sleep quality
- adverse drug
- loop mediated isothermal amplification
- quantum dots