Impact of enucleation on adult retinoblastoma survivors' quality of life: A qualitative study of survivors' perspectives.
Smita C BanerjeeElaine PottengerMary PetriccioneJoanne F ChouJennifer S FordCharles A SklarLeslie L RobisonRuth A KleinermanKevin C OeffingerJasmine H FrancisDavid H AbramsonIra J DunkelDanielle Novetsky FriedmanPublished in: Palliative & supportive care (2021)
This study suggests that adult retinoblastoma survivors treated with enucleation continue to struggle with a unique set of psychosocial problems. Future interventions can be designed to teach survivors more active coping skills (e.g., for appearance-related issues, vision-related issues, and teasing/bullying) to optimize survivors' long-term quality of life.