Demonstrating the feasibility of collecting secondary, de-identified data on Australian patients receiving treatment as part of a Medicine Access Programme.
Sheau Wen LokRichard De BoerCassandra CordwellGavin MarxPeter FoxCsilla HasovitsJoseph RutovitzMichael HaroldBen TranHui-Li WongPeter GibbsPublished in: Internal medicine journal (2020)
This initial report is, to our knowledge, the first description of a secondary data use non-interventional study collecting comprehensive data on patients enrolled, independently, in a MAP. This effort continues and opportunities with other industry partners are being pursued.
Keyphrases
- electronic health record
- end stage renal disease
- big data
- chronic kidney disease
- ejection fraction
- newly diagnosed
- peritoneal dialysis
- prognostic factors
- data analysis
- machine learning
- randomized controlled trial
- patient reported outcomes
- deep learning
- artificial intelligence
- patient reported
- human immunodeficiency virus
- replacement therapy