Experiences of being a severely ill parent of dependent children receiving care at home: Hopes and challenges.
Maja HolmMalin LövgrenAnette AlvarizaRakel EklundUlrika KreicbergsPublished in: Palliative & supportive care (2023)
Severely ill parents in specialized palliative home care seek support regarding how to communicate and stay connected to their roles in the family, which is a struggle when a parent is cared for at home, while it in contrast may promote normality and hope. Communication with children is vital and needs to be brought to the attention of health-care professionals. A family-centered focus, involving both parents and children, should be embraced.