The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study).

Kate KhairAnna KlukowskaLinda Myrin WestessonKaan KavakliCarmen EscuriolaNanda UitslagerCristina SantoroMike HollandSylvia von Mackensen

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2019)

Caregiver burden can be affected by the child's haemophilia status, particularly if joint health is impacted (eg bleeds, decreased mobility) or if the child suffers from chronic pain which was moderately correlated with joint bleeds.

Keyphrases

chronic pain
mental health
healthcare
public health
young adults
palliative care
risk factors
health information
social media
human health