Development of an electronic patient-reported outcome measure (ePROM) system to aid the management of patients with advanced chronic kidney disease.

Derek G KyteNicola AndersonRam AutiOlalekan Lee AiyegbusiJon BishopAndrew BissellElizabeth BrettellMelanie CalvertMarie ChadburnPaul CockwellMary DuttonHelen EddingtonElliot ForsterGabby HadleyNatalie J IvesLouise JacksonSonja O'BrienGary PriceKeeley SharpeStephanie StringerGael StephensonRav VerdiJudi WatersAdrian WilcocksonJim Williams

Published in: Journal of patient-reported outcomes (2020)

Routine ePROM collection with real-time feedback has the potential to improve outcomes and reduce health service costs. We have successfully developed a trial-ready ePROM system for advanced CKD, the feasibility of which is currently being explored in a pilot trial. Assuming feasibility is demonstrated, formal evaluation of efficacy will take place in a future multi-centre randomised controlled trial.

Keyphrases

chronic kidney disease
patient reported outcomes
study protocol
end stage renal disease
clinical trial
randomized controlled trial
current status
clinical practice
phase ii
human health
metabolic syndrome
adipose tissue
insulin resistance
peritoneal dialysis
skeletal muscle
open label