Relationship of race and ethnicity on access, timing, and disparities in pediatric palliative care for children with cancer.
Nicholas P DeGrooteKristen E AllenErin E FalkCristina Velozzi-AverhoffKaren Wasilewski-MaskerKhaliah JohnsonKatharine E BrockPublished in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2021)
Of 426 patients who experienced a high-risk event, 48% were non-Hispanic White, 31% were non-Hispanic Black, 15% were Hispanic of any race, and 4% were non-Hispanic Asian. No significant differences were found between race/ethnicity and age at diagnosis/death, sex, and diagnosis. PPC consultation (p = 0.03) differed by race. Non-Hispanic Black patients were 1.7 times more likely than non-Hispanic White patients to receive PPC after adjustment (p = 0.01). White patients spent less days in the hospital in the last 90 days of life (3.0 days) compared with Black (8.0), Asian (12.5), or Hispanic patients (14.0, p = 0.009) CONCLUSION: Disparities exist in patients receiving pediatric oncology and PPC services. Cultural tendencies as well as unconscious and cultural biases may affect PPC referral by race and ethnicity. Better understanding of cultural tendencies and biases may improve end-of-life outcomes for children and young adults with cancer.
Keyphrases
- end stage renal disease
- palliative care
- chronic kidney disease
- ejection fraction
- newly diagnosed
- healthcare
- african american
- primary care
- squamous cell carcinoma
- prognostic factors
- emergency department
- type diabetes
- young adults
- mental health
- papillary thyroid
- skeletal muscle
- adverse drug
- advanced cancer
- affordable care act