Divergent perspectives: exploring the relationships between St. George's Respiratory Questionnaire and outcome measures in systemic sclerosis-associated interstitial lung disease.
Enes BasaranDuygu Temiz KaradağOzgur CakirNeslihan GokcenAyten YazıcıAyşe CeflePublished in: Clinical rheumatology (2024)
Our study reveals varying degrees of correlation between SGRQ and distinct outcome measures. Given the incomplete alignment of SGRQ with other outcome measures, an integrative approach utilizing existing criteria as complementary tools is recommended. Key Points • Patient-reported outcome measures (PROMs) derive from patients' subjective evaluations of the impact of the disease on their daily activities, social interactions, and psychological well-being. • PROMs frequently serve as outcome measures in randomized controlled trials, yet conflicting findings have emerged in relation to primary outcomes. • This study aims to assess the appropriateness and interrelation of PROMs with both radiological and functional outcome measures, providing insight into the current state of our patients in a real-life context. The investigation delves into the compatibility of these measures with each other.
Keyphrases
- patient reported outcomes
- systemic sclerosis
- interstitial lung disease
- patient reported
- end stage renal disease
- ejection fraction
- chronic kidney disease
- newly diagnosed
- randomized controlled trial
- healthcare
- prognostic factors
- peritoneal dialysis
- mental health
- type diabetes
- clinical trial
- sleep quality
- adipose tissue
- idiopathic pulmonary fibrosis
- insulin resistance
- depressive symptoms
- psychometric properties