Understanding the experiences of lung volume recruitment among boys with Duchenne muscular dystrophy: A multicenter qualitative study.
Sherri Lynne KatzHenrietta BlinderDennis NewhookLeana Azerrad BmusStuart NichollsHugh J McMillanJean K MahCraig CampbellLaura C McAdamDavid ZielinskiKarine Toupin-AprilFranco MomoliDouglas A McKimPublished in: Pediatric pulmonology (2022)
Despite the benefits of LVR and positive experiences with it by many families, there remain barriers to adherence to treatment. HCPs need to balance the need for early introduction to give families time to adapt to LVR while ensuring that the benefit of LVR outweighs the burden. Clinician support is important for family engagement.